Spiritual end-of-life care in Dutch nursing homes: an ethnographic study.
Identifieur interne : 001122 ( Main/Exploration ); précédent : 001121; suivant : 001123Spiritual end-of-life care in Dutch nursing homes: an ethnographic study.
Auteurs : Marie-José H E. Gijsberts [Pays-Bas] ; Jenny T. Van Der Steen ; Martien T. Muller ; Cees M P M. Hertogh ; Luc DeliensSource :
- Journal of the American Medical Directors Association [ 1538-9375 ] ; 2013.
Descripteurs français
- KwdFr :
- Adaptation psychologique (MeSH), Démence (psychologie), Femelle (MeSH), Humains (MeSH), Maisons de repos (MeSH), Mâle (MeSH), Pays-Bas (MeSH), Personnes handicapées (MeSH), Recherche qualitative (MeSH), Relations entre professionnels de santé et patients (MeSH), Soins terminaux (MeSH), Spiritualité (MeSH).
- MESH :
- Wicri :
- geographic : Pays-Bas.
English descriptors
- KwdEn :
- MESH :
- geographic : Netherlands.
- psychology : Dementia.
- Adaptation, Psychological, Disabled Persons, Female, Humans, Male, Nursing Homes, Professional-Patient Relations, Qualitative Research, Spirituality, Terminal Care.
Abstract
OBJECTIVES
The aim of this study was to explore if and how spiritual needs are assessed and if spiritual care is provided to Dutch nursing home residents, including residents suffering from dementia, and if and how caregivers communicate and collaborate regarding the residents' spiritual needs.
DESIGN
Two researchers conducted an ethnographic participatory study in a Dutch nursing home between April 2010 and June 2011, on a psychogeriatric unit (mostly dementia) and a somatic unit for residents suffering from physical disabilities. Inductive thematic analysis was used to identify patterns and trends and to interpret the data.
RESULTS
The physicians did not actively address spiritual issues, nor was it part of the official job of care staff. There was no communication between the physicians and the spiritual counselor. When a resident was about to die, the nurses started an informal care process aimed at (spiritual) well-being, including cuddling, rituals, and music. This was not mentioned in the care plan or the medical chart. The nurses even supported the residents outside their professional role in their spare time. Furthermore, we identified different occupational subcultures (eg, nurses and physicians), in which behavior of residents was given different meaning, depending on the frame of reference within the subculture.
CONCLUSION
Spiritual issues were addressed only informally and were not part of the formal care process, either for residents suffering from dementia or for those with physical disabilities. Our results raise questions about how the lack of communication about spiritual end-of-life care between disciplines, and the informal and formal care processes affect spiritual well-being.
DOI: 10.1016/j.jamda.2013.04.001
PubMed: 23702603
Affiliations:
Links toward previous steps (curation, corpus...)
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Electronic address: m.gijsberts@vumc.nl.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>VU University Medical Center, EMGO Institute for Health and Care Research, Department of General Practice and Elderly Care Medicine, Amsterdam, The Netherlands; VU University Medical Center, EMGO Institute for Health and Care Research, Department of Public and Occupational Health, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Van Der Steen, Jenny T" sort="Van Der Steen, Jenny T" uniqKey="Van Der Steen J" first="Jenny T" last="Van Der Steen">Jenny T. Van Der Steen</name></author><author><name sortKey="Muller, Martien T" sort="Muller, Martien T" uniqKey="Muller M" first="Martien T" last="Muller">Martien T. Muller</name></author><author><name sortKey="Hertogh, Cees M P M" sort="Hertogh, Cees M P M" uniqKey="Hertogh C" first="Cees M P M" last="Hertogh">Cees M P M. Hertogh</name></author><author><name sortKey="Deliens, Luc" sort="Deliens, Luc" uniqKey="Deliens L" first="Luc" last="Deliens">Luc Deliens</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2013">2013</date><idno type="RBID">pubmed:23702603</idno><idno type="pmid">23702603</idno><idno type="doi">10.1016/j.jamda.2013.04.001</idno><idno type="wicri:Area/Main/Corpus">001166</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">001166</idno><idno type="wicri:Area/Main/Curation">001166</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">001166</idno><idno type="wicri:Area/Main/Exploration">001166</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Spiritual end-of-life care in Dutch nursing homes: an ethnographic study.</title><author><name sortKey="Gijsberts, Marie Jose H E" sort="Gijsberts, Marie Jose H E" uniqKey="Gijsberts M" first="Marie-José H E" last="Gijsberts">Marie-José H E. Gijsberts</name><affiliation wicri:level="3"><nlm:affiliation>VU University Medical Center, EMGO Institute for Health and Care Research, Department of General Practice and Elderly Care Medicine, Amsterdam, The Netherlands; VU University Medical Center, EMGO Institute for Health and Care Research, Department of Public and Occupational Health, Amsterdam, The Netherlands. Electronic address: m.gijsberts@vumc.nl.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>VU University Medical Center, EMGO Institute for Health and Care Research, Department of General Practice and Elderly Care Medicine, Amsterdam, The Netherlands; VU University Medical Center, EMGO Institute for Health and Care Research, Department of Public and Occupational Health, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Van Der Steen, Jenny T" sort="Van Der Steen, Jenny T" uniqKey="Van Der Steen J" first="Jenny T" last="Van Der Steen">Jenny T. Van Der Steen</name></author><author><name sortKey="Muller, Martien T" sort="Muller, Martien T" uniqKey="Muller M" first="Martien T" last="Muller">Martien T. Muller</name></author><author><name sortKey="Hertogh, Cees M P M" sort="Hertogh, Cees M P M" uniqKey="Hertogh C" first="Cees M P M" last="Hertogh">Cees M P M. Hertogh</name></author><author><name sortKey="Deliens, Luc" sort="Deliens, Luc" uniqKey="Deliens L" first="Luc" last="Deliens">Luc Deliens</name></author></analytic><series><title level="j">Journal of the American Medical Directors Association</title><idno type="eISSN">1538-9375</idno><imprint><date when="2013" type="published">2013</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological (MeSH)</term><term>Dementia (psychology)</term><term>Disabled Persons (MeSH)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>Male (MeSH)</term><term>Netherlands (MeSH)</term><term>Nursing Homes (MeSH)</term><term>Professional-Patient Relations (MeSH)</term><term>Qualitative Research (MeSH)</term><term>Spirituality (MeSH)</term><term>Terminal Care (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adaptation psychologique (MeSH)</term><term>Démence (psychologie)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Maisons de repos (MeSH)</term><term>Mâle (MeSH)</term><term>Pays-Bas (MeSH)</term><term>Personnes handicapées (MeSH)</term><term>Recherche qualitative (MeSH)</term><term>Relations entre professionnels de santé et patients (MeSH)</term><term>Soins terminaux (MeSH)</term><term>Spiritualité (MeSH)</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Netherlands</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Démence</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Dementia</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term><term>Disabled Persons</term><term>Female</term><term>Humans</term><term>Male</term><term>Nursing Homes</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Spirituality</term><term>Terminal Care</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adaptation psychologique</term><term>Femelle</term><term>Humains</term><term>Maisons de repos</term><term>Mâle</term><term>Pays-Bas</term><term>Personnes handicapées</term><term>Recherche qualitative</term><term>Relations entre professionnels de santé et patients</term><term>Soins terminaux</term><term>Spiritualité</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Pays-Bas</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>OBJECTIVES</b></p><p>The aim of this study was to explore if and how spiritual needs are assessed and if spiritual care is provided to Dutch nursing home residents, including residents suffering from dementia, and if and how caregivers communicate and collaborate regarding the residents' spiritual needs.</p></div><div type="abstract" xml:lang="en"><p><b>DESIGN</b></p><p>Two researchers conducted an ethnographic participatory study in a Dutch nursing home between April 2010 and June 2011, on a psychogeriatric unit (mostly dementia) and a somatic unit for residents suffering from physical disabilities. Inductive thematic analysis was used to identify patterns and trends and to interpret the data.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>The physicians did not actively address spiritual issues, nor was it part of the official job of care staff. There was no communication between the physicians and the spiritual counselor. When a resident was about to die, the nurses started an informal care process aimed at (spiritual) well-being, including cuddling, rituals, and music. This was not mentioned in the care plan or the medical chart. The nurses even supported the residents outside their professional role in their spare time. Furthermore, we identified different occupational subcultures (eg, nurses and physicians), in which behavior of residents was given different meaning, depending on the frame of reference within the subculture.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSION</b></p><p>Spiritual issues were addressed only informally and were not part of the formal care process, either for residents suffering from dementia or for those with physical disabilities. Our results raise questions about how the lack of communication about spiritual end-of-life care between disciplines, and the informal and formal care processes affect spiritual well-being.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">23702603</PMID><DateCompleted><Year>2014</Year><Month>04</Month><Day>24</Day></DateCompleted><DateRevised><Year>2013</Year><Month>09</Month><Day>09</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1538-9375</ISSN><JournalIssue CitedMedium="Internet"><Volume>14</Volume><Issue>9</Issue><PubDate><Year>2013</Year><Month>Sep</Month></PubDate></JournalIssue><Title>Journal of the American Medical Directors Association</Title><ISOAbbreviation>J Am Med Dir Assoc</ISOAbbreviation></Journal><ArticleTitle>Spiritual end-of-life care in Dutch nursing homes: an ethnographic study.</ArticleTitle><Pagination><MedlinePgn>679-84</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1016/j.jamda.2013.04.001</ELocationID><ELocationID EIdType="pii" ValidYN="Y">S1525-8610(13)00185-0</ELocationID><Abstract><AbstractText Label="OBJECTIVES" NlmCategory="OBJECTIVE">The aim of this study was to explore if and how spiritual needs are assessed and if spiritual care is provided to Dutch nursing home residents, including residents suffering from dementia, and if and how caregivers communicate and collaborate regarding the residents' spiritual needs.</AbstractText><AbstractText Label="DESIGN" NlmCategory="METHODS">Two researchers conducted an ethnographic participatory study in a Dutch nursing home between April 2010 and June 2011, on a psychogeriatric unit (mostly dementia) and a somatic unit for residents suffering from physical disabilities. Inductive thematic analysis was used to identify patterns and trends and to interpret the data.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The physicians did not actively address spiritual issues, nor was it part of the official job of care staff. There was no communication between the physicians and the spiritual counselor. When a resident was about to die, the nurses started an informal care process aimed at (spiritual) well-being, including cuddling, rituals, and music. This was not mentioned in the care plan or the medical chart. The nurses even supported the residents outside their professional role in their spare time. Furthermore, we identified different occupational subcultures (eg, nurses and physicians), in which behavior of residents was given different meaning, depending on the frame of reference within the subculture.</AbstractText><AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">Spiritual issues were addressed only informally and were not part of the formal care process, either for residents suffering from dementia or for those with physical disabilities. Our results raise questions about how the lack of communication about spiritual end-of-life care between disciplines, and the informal and formal care processes affect spiritual well-being.</AbstractText><CopyrightInformation>Copyright © 2013 American Medical Directors Association, Inc. Published by Elsevier Inc. All rights reserved.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Gijsberts</LastName><ForeName>Marie-José H E</ForeName><Initials>MJ</Initials><AffiliationInfo><Affiliation>VU University Medical Center, EMGO Institute for Health and Care Research, Department of General Practice and Elderly Care Medicine, Amsterdam, The Netherlands; VU University Medical Center, EMGO Institute for Health and Care Research, Department of Public and Occupational Health, Amsterdam, The Netherlands. 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Hertogh</name><name sortKey="Muller, Martien T" sort="Muller, Martien T" uniqKey="Muller M" first="Martien T" last="Muller">Martien T. Muller</name><name sortKey="Van Der Steen, Jenny T" sort="Van Der Steen, Jenny T" uniqKey="Van Der Steen J" first="Jenny T" last="Van Der Steen">Jenny T. Van Der Steen</name></noCountry><country name="Pays-Bas"><region name="Hollande-Septentrionale"><name sortKey="Gijsberts, Marie Jose H E" sort="Gijsberts, Marie Jose H E" uniqKey="Gijsberts M" first="Marie-José H E" last="Gijsberts">Marie-José H E. Gijsberts</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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